AWARENESS DAY FOR USHER SYNDROME


AWARENESS DAY FOR USHER SYNDROME


Usher Syndrome is a relatively rare genetic disorder caused by a mutation in any one of at least 10 genes resulting in a combination of hearing loss and visual impairment, and is a leading cause of combined deafness and blindness.

Research revealed that more than 400,000 people are affected by this genetic disorder worldwide, of which 70,000 are in Nigeria.

Presently, Usher Syndrome is incurable and it negatively impacts three major senses in the body; the Vision, hearing and balance.

Due to limited public awareness, the affected suffers depression, anxiety, isolation and loss of independence.

Do not let this brief enlightenment lead you to a pity party, it’s really not about taking pity, it’s all about grooming and inclusion.

People affected with Usher Syndrome needs to be groomed academically and socially to live life as normal as possible.

 3rd Saturday of September has been set aside to create public awareness on Usher Syndrome worldwide. This prompted Friends of the Deaf Foundation in collaboration with Deaf/Disabilities Organizations and stakeholders to organize awareness walk on the 15th September, 2018.

Everyone is invited!!!

Let’s make our society inclusive because Everyone is Important as everyone's existence is for a purpose, utilizing the purposes will contribute enormously to societal growth.

Embrace Inclusion!
Give hope to People with Disabilities!!
Everyone is Important!!!

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